When a doctor finds dementia: first steps for families
Learning that a parent has dementia can bring a lot of questions at once. This guide covers first steps families often take, planning ahead, daily routines and where to find support.
General information only. This guide is not medical, legal or financial advice. Talk with a physician, and with an elder-law or financial professional where money or legal papers are involved, about your own situation.
The first few weeks
The first weeks are often about learning and asking questions. Many families start by talking with the doctor about what to expect and what decisions lie ahead.
- Ask whether a referral to a memory clinic or specialist makes sense.
- Learn about the condition from trusted sources, such as the National Institute on Aging.
- If the person works, ask the employer about leave and disability benefits.
Planning legal and money matters early
The Alzheimer's Association calls legal and money planning one of the most important early steps. Planning early lets the person take part and say what they want.
Documents families often prepare or update include:
- A will
- A living will
- A health care power of attorney
- A financial power of attorney
- A plan for long-term care and how to pay for it
Keeping a daily routine
A steady routine can make daily life calmer. The National Institute on Aging suggests bathing, dressing and eating at the same time each day.
Other ideas from federal sources:
- Simple memory aids, such as notes, a pillbox and a calendar for appointments
- A calm home with less noise and clutter, and familiar photos nearby
- Regular physical activity, which can help mood and sleep
- Hobbies and time with family and friends
Building a circle of support
Family, friends and local services can share the load. These are good places to start.
- The Eldercare Locator, 800-677-1116, finds local services for older adults and caregivers.
- The Alzheimer's Association helpline, 800-272-3900, is open 24 hours a day.
- Local groups and support groups, which the Alzheimer's Association can help you find
- Family members or friends who can help with cooking, bills, rides or shopping
Frequently asked questions
Planning while the person can still take part lets them help make decisions and share their wishes with family. A lawyer can explain the documents.
Yes. The Alzheimer's Association runs a helpline open 24 hours a day at 800-272-3900.
The National Institute on Aging suggests talking with the doctor if the person gets lost or confused while driving, or others worry. A driving evaluation can help.
Sources
SeniorLeaf is not affiliated with or endorsed by the organizations listed here.